• Whole Bangla

Mokaram is suffering from a rare disease, treatment is stopped due to lack of money

  • Whole Bangla
  • 14 March, 2024 19:58:21

Photo: Collected

Kurigram representative: Korban Ali son of Mokaram (23), a day laborer of Sabujpara village of Kaliganj union of Nageshwari upazila of Kurigram. He has a rare disease called lipoproteinosis. Mokaram has been living with lipopod proteinosis disease for more than a century. Mokaram was diagnosed with this disease when he was in the third grade. He is suffering from this rare disease at the age when he should be with his friends in school or playground. He cannot walk or sit even if he wants to. The whole body is covered with this disease. This teenager is suffering from unbearable pain.

Mokaram's father Korban Ali could not arrange good treatment even after selling his last possessions to cure the boy. In such a situation, Korban Ali, a day laborer's father, sought the help of the rich. It is known that Mokaram was healthy and strong since birth. He used to study regularly and play sports with his friends. Suddenly one day Mokaram fell ill. When he felt pain in his whole body, Mokaram's father took his son to the local doctor.

For a long time, doctor Kabiraj showed him no work. Then they left for Dhaka. By that time, Mokaram's whole body was covered with this rare disease called lipoproteinosis. In the meantime, Mokaram's mother died. After 4 months of treatment at Dhaka PG Hospital, the family returned disappointed due to lack of money. Doctors say that this rare disease can be cured if treated well.

However, the family is worried because the treatment cost of this disease is very expensive. Mokaram said, he spends the whole day lying in bed. Even if he wants to, he cannot walk or play. It is very difficult. The taste of food is decreasing day by day. I want to get well. Mokram's father Korban Ali said, My son Mokram was diagnosed with eros since he was a child and could not be cured even after many treatments. My son is very talented and wants to study. Day by day the body is becoming dry and stiff. I cannot express in words the pain of not being able to get treatment for my son due to lack of money.

He also said that my joint demand to the government and donors would have been very good if my son was provided with better treatment. Local UP member Mohammad Ali said, Mokaram has been suffering from this disease since he was 6 years old. Even after many treatments, he did not recover, meanwhile, after his treatment, the poor family sold the land and became peaceful. If better treatment could have been arranged then Mokram Mia would have returned to a beautiful life.

Former civil surgeon of Kurigram district Dr. SM Aminul Islam said, this disease is a very rare disease. It appeared in the body of this patient at the age of 6 years of birth. Due to lipopod proteinosis disease, the patient's whole body is shriveled and old. It affects the human body due to adrenal insufficiency. However, it is an expensive treatment. Mokaram may be able to recover with advanced treatment.

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